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Graeme Shinnie - Crohn's Disease


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https://www.eveningexpress.co.uk/fp/sport/football/aberdeen-fc/donsnews/former-aberdeen-captain-graeme-shinnie-feared-crohns-disease-would-end-his-dreams-of-a-career-in-football/

Glad Graeme has spoken about this horrible disease.

My son had a major operation too two years ago and, although like Shinnie is in better health now, thankfully, it has to be highlighted how many folk are now susceptible to developing the disease.

Certainly puts things into perspective.

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Darren Fletcher has it as well. 
 

I have a form of this called ulcerative colitis, dormant for ages, then 4-6 weeks of hell. The “have you ever shit yourself” comments make me chuckle. Yes, numerous times. 

It’s far more common than people think. People say “ah, but if you cut out eating this or start eating this, it will be better”  Does it fuck.

 

 

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5 hours ago, Wester Hailes Skins said:

In a world where it's all about aggressive identity politics and putting us in boxes against each other, I always think it's health and disabilities that the media and do gooders seem to ignore.

Good luck to anyone if they or their family have health, disability or condition challenges. 

Fair play mate...?

but not to lose sight of putting each other in boxes, I think we concluded that Aberdeen are a bigger club than Hearts on the other thread ?

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8 hours ago, donswin1983 said:

Fair play mate...?

but not to lose sight of putting each other in boxes, I think we concluded that Aberdeen are a bigger club than Hearts on the other thread ?

I'd admit Aberdeen were and are bigger, for a better world for those with disabilities. 

But in the meantime. You're equal 4th, with THEM in size. ?

Take care mate. ??

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20 hours ago, Woody21 said:

https://www.eveningexpress.co.uk/fp/sport/football/aberdeen-fc/donsnews/former-aberdeen-captain-graeme-shinnie-feared-crohns-disease-would-end-his-dreams-of-a-career-in-football/

Glad Graeme has spoken about this horrible disease.

My son had a major operation too two years ago and, although like Shinnie is in better health now, thankfully, it has to be highlighted how many folk are now susceptible to developing the disease.

Certainly puts things into perspective.

Dad?!

Didn't even know you liked football...

Jesting aside, ended up in the same boat about 18 months ago, as I said somewhere on here before.  Took a while to get the diagnosis (they operated and removed my appendix and part of my bowel before it was diagnosed in the biopsy) and it wasn't the nicest of years in advance.  Nae fine going through that in my 30s, never mind the possibility of dealing with it through the teens like Shinnie.

 

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How low can folk get?

This disease is really life changing, for most folk who suffer from it, and all quite a few of you can do is joke about it!

All I was attempting to do was raise awareness not give opportunity for some to be totally insensitive.

Really hope the folk involved are never impacted by this awful disease.

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7 minutes ago, Woody21 said:

How low can folk get?

This disease is really life changing, for most folk who suffer from it, and all quite a few of you can do is joke about it!

All I was attempting to do was raise awareness not give opportunity for some to be totally insensitive.

Really hope the folk involved are never impacted by this awful disease.

You obviously dont get how this place works lad. 

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3 hours ago, Woody21 said:

How low can folk get?

This disease is really life changing, for most folk who suffer from it, and all quite a few of you can do is joke about it!

All I was attempting to do was raise awareness not give opportunity for some to be totally insensitive.

Really hope the folk involved are never impacted by this awful disease.

I have it and don’t mind the comments. “He’s one of our crohn” made me chuckle. If you can’t rip the pish (or shit) out of yourself, then you can’t give it back to other folk on other subjects. I’m happy to be a giver and a taker. 
 

Yes, it’s a horrible disease that can be depressing at times, but I think this thread had raised people’s awareness which is a good thing. 
 

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4 hours ago, Woody21 said:

How low can folk get?

This disease is really life changing, for most folk who suffer from it, and all quite a few of you can do is joke about it!

All I was attempting to do was raise awareness not give opportunity for some to be totally insensitive.

Really hope the folk involved are never impacted by this awful disease.

I've got a good friend with the illness. It is nasty, when he goes to hospital with it it's really grim. 
 

Just jokes though. 

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7 hours ago, maryhilldon said:

My pal had to go in for surgery for Chrohs about 12/13 years ago.  Visited him in hospital and left him a spliff in his bedside drawer.  He was skinny then put on about 3 stone  post op within 6 months and looked fine. 

That's the key.

Having the courage to have the major surgery.

When my son received his operation there was another chap, also around 25, who was really skinny and weak, and had suffered with Crohn's for years. Even so that chap was still not having an operation at that time.

Maryhilldon is right to highlight that the operation can give quality of life back.

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10 hours ago, Don Fonte said:

That's a hell of a case of the munchies.

Similar with a lot of these cases including me. Doctors find it very hard to diagnose so the patient can be in limbo for a long time not knowing what’s wrong with them plus shitting/bleeding a lot. 
 

Once diagnosed (if no colostomy bag/stoma required) a 6/8 weeks dose of steroids can often be given. Those steroids give you serious munchies. I lost 3 stone in 6 months pre-diagnosis and then put 2 stone back on in 6 weeks post-diagnosis and steroids. 

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1 hour ago, Sooper-hanz said:

Having to limbo whilst touching cloth a lot doesn’t sound a lot of fun .

Just as a point of fact Crohn's is a hell of a lot more than the shits.

My son lost 4 stone pre operation because he basically stopped eating as much through the fear of the pain that certain foods could cause.

Some folk on here are correct to say he can see the funny side of certain situations now but the 2 years leading up to his operation, as young adult, were absolutely horrendous.

He now posts on various related sites giving advice and encouragement to pre operation sufferers, which I know helps him and those he connects with a great deal.

 

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3 minutes ago, Woody21 said:

Just as a point of fact Crohn's is a hell of a lot more than the shits.

My son lost 4 stone pre operation because he basically stopped eating as much through the fear of the pain that certain foods could cause.

Some folk on here are correct to say he can see the funny side of certain situations now but the 2 years leading up to his operation, as young adult, were absolutely horrendous.

He now posts on various related sites giving advice and encouragement to pre operation sufferers, which I know helps him and those he connects with a great deal.

 

Did he try and walk it off? worked for me.

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2 minutes ago, daytripping said:

Did he try and walk it off? worked for me.

He tried everything leading up to operation but, without going in to detail, after a third stay in hospital in 6 months an operation was basically the only option left.

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On 3/22/2021 at 12:29 PM, Woody21 said:

Just as a point of fact Crohn's is a hell of a lot more than the shits.

My son lost 4 stone pre operation because he basically stopped eating as much through the fear of the pain that certain foods could cause.

Some folk on here are correct to say he can see the funny side of certain situations now but the 2 years leading up to his operation, as young adult, were absolutely horrendous.

He now posts on various related sites giving advice and encouragement to pre operation sufferers, which I know helps him and those he connects with a great deal.

Great to hear about your son giving advice and encouragement to others in relation to this?

My oldest has just recently been diagnosed with Crohn's and is very much at the start of his journey which for a teenage lad is a hell of a lot to deal with considering everything else going on with him at that age. However he is taking it in his stride and coping with it so far. Looking back the signs were there to see  but we never once thought it would be Crohn's.

It took about a year or so to get a confirmed diagnosis after a series of tests and a colonoscopy which resulted in him having to do the modulin for 8 weeks initially (and on another occasion following a flare up) and he is also on Azathioprine daily to keep things stable.

Had a few emergency trips to A&E due to blockages and flare ups and fully expect these will probably continue as he gets older but at least we know what to look out for now.

Have to say the support and work from the team at the children's hospital had been nothing short of amazing.

Good to read about others and their own  or family experiences with this condition.

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